OHS: Update 8:15pm

19 Apr

Malachi is stable now! The surgeon just called. He said we should be able to see him soon. Thank you for praying for him. I was so scared!

OHS: Update 7:15pm Please pray!

19 Apr

His cardiologist just came down to see us and called us into a room. Malachi is bleeding. On the back of his heart. Blood pressure is low. Heart rate is high. He was already moved to his room so the doctor is reopening his chest in the ICU to find the bleeder. Please pray he finds it and that Malachi will stabilize. I want to see him so bad. I love my sweet boy.

OHS: Update 4:14pm

18 Apr

The doctor came out to talk to us. He was glad they opted to change out the conduit. It was thickening a lot and would’ve required intervention sooner than later. The one he used this time should last until adulthood and can be ballooned if needed via a cath. The VSD closure was successful. No arrhythmia issues. He looks so tired. He told us to go get dinner. We will probably get a call around 6pm to come see our precious boy!

OHS: Update 3:52pm

18 Apr

TEE looked good! They are closing him up. We should be able to meet with the doctor in 30 minutes and see Malachi in about 2 hours. Thank you Lord. We are so blessed.

OHS: Update 3pm

18 Apr

He’s off the heart/lung bypass as of 2:40pm! His heart is beating on its own. PTL! 🎉His body temp is back up to normal (they put him into hypothermia or something during the procedure). They’ve ordered a trans-esophageal echo (TEE) and if everything looks good they will be putting in his drains, etc. and closing him up.

OHS: Update 2pm

18 Apr

They’ve finished closing the VSD (re-closing). The doctor is replacing the pulmonary artery conduit now. They’ve had to give him some red blood cells and the post-op blood products have arrived and are ready for post op procedures. It is nearing the time he had a bleeding episode the first time. Please say a prayer with us that Malachi’s body will not have any bleeding issues. He’s still on the bypass machine.

OHS: Update 11am

18 Apr

they just put him on the bypass machine.

OHS: Update 10am

18 Apr

Doctor is just starting the incision now. It took until now to get all of the IVs (3) and prep. 😔

OHS: Update 8:23am

18 Apr

He was pretty emotional and cried when they took him to surgery. He was pitiful. But he was pretty funny when the med kicked in. It wasn’t enough though once he couldn’t see me anymore. They are starting surgery now. Next call will be in 1.5-2 hours.

OHS: Update 7:30am

18 Apr

We are waiting on the meds to kick in so he can go back sleepy. He said he didn’t want to be at the hospital and he wants to be with Josiah. 😢 But, he’s been playing and in a good mood. He drew a Christmas tree on the bed with presents. He said the biggest present 🎁 is for Hannah Lu (his new sister…I don’t think I’ve posted on the blog about her yet. Lol. I need to do that soon.)