Malachi is Doing so Well

28 Apr

Malachi is doing so well. God is amazing! Here are a few of my latest FB posts:

Friday 12pm: He looks a little disheveled but he is so happy to have the breathing tube out! Look at that sweet smile. After they took it out he went a little hysterical, for what felt like, 30 minutes. Just crying, screaming, asking for Josiah, Daddy, Papa Gerry, Grandma….we FaceTimed with them and he hysterically told them what happened. I think having that tube in for so many days, without being able to talk (the kid loves to talk)…he just needed to let it all out. Now he is happy watching a show. Unfortunately, his blood pressure has been climbing and they had to add in another med to keep it down. It is crawling back up again. It is serious because they believe his seizures are being caused by the high bp. His spinal tap came back fine. So, they are treating him for PRES syndrome and we will go home on Keppra twice per day to prevent seizures. We are scared to death of him stopping breathing so we’ve asked for some kind of meter with an alarm. They took the eeg off but didn’t wash his head yet. That is why his hair is a mess. I wanted to add something else to pray for. He bit his tongue bad during that last seizure and has a huge sore on his tongue. It looks so painful. Please pray it resolved quickly. Eating makes this kid so happy.

Friday 3pm: Happy to have his hair washed and teeth brushed! We are still waiting to see when he can eat/drink.

Friday 8pm: I’m home. (Kevan is at the hospital with Malachi.) I’m in my own very comfy bed. Josiah is sleeping and I’m about to doze off. I am laying here overwhelmed by God’s goodness. A few days ago I thought I might lose my son. Today, I’m rejoicing that he played all afternoon, sat up in a chair, ate a ton including a plate of spaghetti and our boys had the most precious FaceTime phone call together. Malachi told Josiah he missed him. Before Josiah could reply his pants fell down (he’s so wiggly). Josiah burst out laughing, Malachi laughed and laughed. He thought it was the funniest thing ever. It was such a joy to see so much happiness after such scary events. God is so good to me. We’ve been overwhelmed this week by so much love. Thank you for loving us, praying for us, visiting us, texting us, bringing us food, gifts, etc. God takes care of His people. Through all of you He has provided us with so much. My heart is full tonight. My sweet Malachi is a miracle and he will have such a testimony of God’s love.

Saturday 8am: my other cutie, Josiah helped me make pancakes this morning. So great to spend time with him today.

Saturday 5:30pm: I’m back up at the hospital. Kevan is on his way home. Malachi moved to a new room but he’s still in ICU. Hopefully, we will move on up to the 7th floor tomorrow. I ordered Panera for our dinner tonight but they canceled our order because they were out. I was so disappointed. I asked Malachi if he wanted Ramen 🍜 noodles, pizza or taco. He said “both”. 😂😂 So I got him all 3. Ramen and pizza were free so that was awesome. I had to call Miss Tiffany because I had no idea how to make the noodles in the microwave. Lol. She’s a pro! He has had a great day. The best part is that he is no longer on IV meds!! Woot woot! I can sit with him in bed now (it was too hard before with all the lines). He can walk around the room. Get up to go potty!! The nurse told me and Kev that Malachi is the talk of the ICU floor. He’s just always happy. He makes everyone smile. Even in the hard things he is so joy filled. #wecouldhavemissedthis #heartwarrior #somuchlove

2 Responses to “Malachi is Doing so Well”

  1. Cira Abreu April 28, 2019 at 2:44 am #

    I’m so happy for Malachi. God bless you all!

    • jayde0401 April 28, 2019 at 10:42 am #

      Thank you! We are so happy too!

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