OHS: Re-repair of the VSD

18 Apr

For those that are not on Facebook, Malachi is having open heart surgery again tomorrow. We went to a routine office visit with his cardiologist and after reviewing his echo she determined there is a leak across the ventricles that is causing his heart to enlarge. Then, a few days later they did a heart cath and were able to see that the baffle that closed the VSD in October was coming unstitched and there is a 1.3 cm hole. Pretty large hole for such a small 7 year old heart.

Tomorrow the doctor will re-open his chest, replace the conduit that connects his new pulmonary artery that they created last May to his heart. He will also repair the baffle. He said it is very unusual for this to pull away so long after surgery. It usually happens within the 1st few weeks. The good thing is that there should now be some scar tissue and the stitches should hold better.

The surgeon is very optimistic. His only concerns are his approach tomorrow (whether to go through the aorta or the conduit to do the repair) and the conduction tissue. This tissue is what controls the electrical portion of the heart. This tissue is invisible. So, he doesn’t want to inadvertently put a stitch in the conductive path. This could cause the need for a pacemaker or some other issues.

We have to be at the hospital at 6:30am and surgery begins at 8. Malachi has been in great spirits. I’m sure it is all the prayers that everyone is praying. Thank you!

We were at pre-op appointments today from 9am to 2:30pm. He was perfect the whole day. Everyone loves him. The radiologist asked if he could stay with her. She called him “Sir” and he said, “my name is not sir! It’s Malachi “. Lol!

They gave him a CHD bag with a heart on it. It had some play dough, gum, heart pillow, bubbles, etc in it and he loved it. He called it his purse. Daddy reminded him it is a bag, not a purse. 😝 He had bloodwork with no tears so they gave him a Spider-Man toy.

5 Responses to “OHS: Re-repair of the VSD”

  1. Jennifer Mayer April 18, 2019 at 12:39 am #

    My son and I pray for Malachi, and will be sending up extra prayers for tomorrow’s successful surgery. He always looks so happy – his spirit is precious. He did a beautiful job coloring the Easter picture!

  2. Rod & Sandy Macleod April 18, 2019 at 1:44 am #

    Both my wife, Sandy, and I have been following Malachi’s journey since it began in the orphanage in China. Our daughter, Jennifer Mayer, has faithfully forwarded your posts at every step of that miraculous journey, and our prayers continue to be offered for Malachi as he prepares for this new surgery…

    • jayde0401 April 18, 2019 at 11:26 am #

      Thank you. Your comments are very sweet. We appreciate your prayers and I know it pleases God when His people love each other in this way.

  3. Twyla Dirden April 18, 2019 at 12:10 pm #

    I have been praying for Malachi since u went to China to adopt him. I will be praying for him today as well. I hope to meet this wonderful boy someday. I cried with joy when ur mom text me about Hannah Lu.Tiffany wants u to know she will be praying for him as well. It seems like such a short time ago that I took care of u and Tiffany in the nursery at RHBC. Time sure goes by fast. Love u Twyla Dirden

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