Good news and Bad news

17 May

Malachi had a good day today. He woke up and was dancing to his Paw Patrol music. Kevan brought Josiah to the hospital and I took him to the sibling play room and outside to the fish pond.

Then, when we got back to the room Malachi was on a break from the “IV pole” so we went for a ride. Took him to the play room on his floor but it was too loud and overwhelmed him very fast. He wanted to go back to bed. But, once we got back out to the hall he wanted to go outside. We took him to the fish pond. On our way back to his room he wanted rice. We didn’t want to miss an opportunity if he wanted to eat so we stopped by the Asian restaurant in the cafeteria and got him some rice. He ended up eating rice, noodles and even a few slices of orange chicken. 😃 I was so happy.

When we got back to the room a huge Chase from Paw Patrol was sitting on his bed with an NG tube sticking out of his nose. Malachi was soooo excited. He said, “MAMA!!” Then pointed to his NG tube and back to Chase’s. He was so excited Chase had one too. 😍 This hospital is wonderful!

We found out Malachi’s infection is serious. 😞 Also, they took a kidney ultrasound and we are still waiting to hear back.

I had asked the woman that did the swallow study to stop by. Malachi was able to swallow small amounts of liquid without issue. So, I asked her if I could allow him to have some liquid in a medicine cup. I thought it would be better to allow small amounts of liquid than saying no altogether. I took Josiah back to my MILs for a nap (I slept too). While we were gone Kev said they came back, thickened some Pediasure and he was able to swallow it just fine! We are so excited for him. He was so happy!!! I think God answered our prayers! He still had the tube but we also decided that the NG is a blessing. We won’t have to force him to take meds when we get home. We can just use the tube! Since he is eating solids and drinking a little we will just supplement the extra via the tube.

Also, while I was gone a very sweet friend sent Malachi some balloons, stuffed animal and some candy. He was so excited! I wish Kev got a pic but he didn’t. I will explain in a bit why I haven’t taken a pic. I called Malachi on my way back up to the hospital and he screamed balloon over and over. Lol! I think he loved them.

When Josiah woke up from his nap he seemed off. Not to mention it took me an hour to wake him up. He felt hot so I tested him and his temp was 101. After 3 attempts to give him some Motrin he got maybe a 1/2 a dose. Giving kids meds is worse than giving them to cats and cats scratch you! 😔

When I got back to the hospital I started feeling sick. Sore throat, earache, chest pain…..so Kev is coming up to switch with me. I really hope Josiah and I aren’t sick. A good day is starting to feel like a bad day. I am hoping after some good rest at Nana’s tonight I will feel a lot better. I do not want to touch any of Malachi’s things in case I’m sick so I don’t have anymore pics of the day.

3 Responses to “Good news and Bad news”

  1. Alice May 17, 2018 at 1:11 am #

    Hope you both feel better .You are just run down so it is easy for you to get something . Get some rest praying you will feel better tomorrow.

  2. Cira Abreu May 17, 2018 at 3:04 am #

    Praying for all of you.

  3. Cira Abreu May 17, 2018 at 3:04 am #

    Praying for all of you.

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